Bedtime with Bella Series, Episode 6
“Click Clack Moo, Cows that Type” AND “One Fish, Two Fish, Red Fish, Blue Fish” Theme: Finding your voice and learning how to advocate for yourself https://www.facebook.com/FPIESorg/videos/1570844399628210/
Bedtime with Bella Series, Episode 5
“Whistle for Willie” by Ezra Jack Keats Theme: What’s hard for us when it comes to food https://www.facebook.com/FPIESorg/videos/1540859332626717/
Bedtime with Bella Series, Episode 4
“Green Eggs and Ham” by Dr. Seuss Theme: How we feel about trying new foods https://www.facebook.com/FPIESorg/videos/1516718441707473/
Bedtime with Bella Series, Episode 3
“Alexander and the Terrible, Horrible, No Good, Very Bad Day” Theme: How some FPIES days are really, really hard and how a bad moment doesn’t mean a bad day https://www.facebook.com/FPIESorg/videos/1483170791728905/
Bedtime with Bella Series, Episode 2
“Ira Sleeps Over” Theme: How we each have our own fears and what it means to be brave https://www.facebook.com/FPIESorg/videos/1455143234531661/
Bedtime with Bella Series, Episode 1
“Pursey’s FPIES Suprise” by Kaylee Page Theme: What it means to be brave, how to try new foods, the beauty of advocacy and how sometimes we have to try and try, and just keep trying https://www.facebook.com/FPIESorg/videos/1421479564564695/
FARE Announces $3M in Funding Opportunities to Support Innovations in Food Allergy Diagnostics and Research on Rare Food Allergy
The Request for Applications is for $1 million to expand our understanding of the processes that underlie food protein-induced enterocolitis syndrome, or FPIES, or to advance the development of new, effective FPIES treatments and prevention strategies.
Getting Creative on a Limited Diet
Living and thriving with a limited diet can be challenging and overwhelming, and is especially compounded when coping with a new diagnosis. Patients and families living with FPIES may experience social, emotional, and developmental difficulties that accompany limited diets. This can lead to feelings that there are few options as well as restlessness and isolation. […]
Creating a Positive Relationship with Food
Some children with FPIES who have experienced acute and/or chronic reactions over a long period of time learn that food has caused them pain and subsequently lose interest in eating solid foods. Other children with FPIES may have had limited exposure to textures and chewing/swallowing at the developmentally appropriate age, leading to oral aversions and […]