Are You an Adult with FPIES?
Researchers from the Division of Allergy at the University of Rochester, Hassenfeld Children’s Hospital at NYU Langone, Texas Children Hospital, Boston Children’s Hospital and Children’s Hospital of Philadelphia, in collaboration with International FPIES Association (I-FPIES: www.fpies.org), invite you to complete an online questionnaire to better characterize the experience of adults with FPIES.
Your answers will help the medical community to better understand your experience with adult FPIES and other adults affected by this disease. If you are interested in participating in this study, please click this link: https://redcap.link/URMCAdultFPIES to answer the interactive questionnaire. There is an information letter that describes the study in more detail once you start the survey.
Please be specific and provide as much information as you are able in the questionnaire. Thank you for your participation!
Sincerely, Theresa Bingemann, MD, Division of Allergy, Immunology and Rheumatology and Pediatric Allergy and Immunology, University of Rochester
Albana Harizaj, MD, Division of Allergy, Immunology and Rheumatology and Pediatric Allergy and Immunology, University of Rochester
Anna Nowak Wegrzyn, MD,PhD, Division of Pediatric Allergy and Immunology, Department of Pediatrics, Hassenfeld Children’s, Hospital at NYU Langone
Sara Anvari, MD, MSc, Division of Immunology, Allergy and Retrovirology, Department of Pediatrics, Texas Children’s, Hospital, Baylor College of Medicine
Lisa Bartnikas, MD, Division of Immunology, Boston Children’s Hospital
Melanie Ruffner, MD, PhD, Division of Allergy and Immunology and the Center for Pediatric Eosinophilic Disorders, Children’s Hospital of Philadelphia