Our journey started the day we found out we were pregnant. Every mother becomes overjoyed with the thought of having a beautiful healthy baby. But to even think for one moment that something could be wrong is unfathomable.
Imagine that you are feeding your precious infant, and within a few hours of eating, he starts vomiting repetitively, becomes floppy and lethargic, and you need to go to the emergency department. Now imagine that this happens over and over. Each time your baby undergoes extensive testing for serious conditions like sepsis and intestinal obstruction, you are told the tests are normal, yet you know there is nothing normal about what your baby is experiencing. You follow up with your pediatrician and still have no answers about what is happening. How do you go about introducing new foods, and are you brave enough to try?
“She just continued to vomit, and vomit, and vomit, and vomit,” the paramedic recalls. “At first I just thought maybe she’d picked up a bug or something, because her sister was in childcare.”
Tyler Trovato loves his peanut butter and jelly sandwiches with a glass of milk, but if he diverges from that and a handful of other foods, the 6-year-old goes into a fit of vomiting and lethargy so severe that he has to go to the emergency room.
Now, in just a year, Schultz has jump started an international education, research and advocacy foundation that allows parents to network and doctors to learn more about the life-threatening condition. The International Association for Food Protein Enterocolitis (IAFFPE) is the first to address the disorder globally.